Tuesday, July 3, 2007

A HUGE sigh of relief

It is with great pleasure that I write this entry. I met with the doctor in charge of my care yesterday, and he announced with no delay that my CT scan was completely normal, and that there was absolutely no need for surgery of any kind!

Deep breaths all around. And then champagne!

I was shocked. Still am. It has been impossible not to be constantly cogitating around the infinite eventualities of all theoretical outcomes. To find myself lying awake at night, despite rather large doses of sleeping medication, working out contingencies for contingencies. And all of a sudden, there is an answer, a clear path, and not only that, the best possible one!

I have not yet made it into full-on celebration mode. For one, my body is nowhere near recovered. But more importantly, I am trepidatious about really letting go. At every turn for the past fifteen months, each time some doctor tells me that everything’s OK and I can get on with my life, the door has been slammed in my face shortly thereafter. Back to the hospital, and again in a gown, not a white coat. I want to believe that this time it’s true, that I can return to my carefully laid-out path, but I can’t help but be a little scared.

There is also a little matter of maintenance chemotherapy. In order to diminish even further the possibility of this crap ever coming back, I will be taking a low dose of etoposide for three months, starting in a month. Supposedly it will merely make me a little more tired than usual for a few days out of each month, but we’ll see about that.

Enough wet blankets! After the appointment, I immediately flew out to DC to celebrate. Washington, DC?!

I have tried in this blog to keep my personal life as private as I can, but to explain what the hell I am doing here, I am going to have to spill some beans. But only a few. Back in April, right in the middle of flying like mad around the country trying to decide where to get treatment, I attended the wedding of a dear friend in San Francisco. And we all know what can happen at weddings. There you are, hanging around for hours with a whole bunch of people, some of whom you know, and many of whom you don’t. But the ones you don’t know have been vetted already: they were invited to the wedding by either your friend, or your friend’s new committed partner. Everyone’s all dressed up and feeling terribly romantic. There’s a dancefloor. You find yourself wanting to throw a little kid through the window because he’s dancing with the girl you want to be dancing with. One thing leads to another, and... here I am in DC. Sarah has been with me more in the past three months than is easily explained, in California and Indiana. She has been stupifyingly supportive and loving, and brought light to what could have been a very dark few months. I am sitting in her Dupont Circle apartment feeling a little bit guilty for not being home to celebrate with many of you, but I hope you will forgive me. We are having a grand time.

46 comments:

Steven said...

Whoo-hooo!!

Oh hell, have fun ya big knucklehead. You've earned it...

Congratulations to you, Mom and Dad. Hell yeah, baby!

Anonymous said...

Yuhu!!!!!!!!!!!!!!
Congratulations!!!!!!!!!
I am going to open a bottle of champagne as well!!

Cheers,
Georg

Unknown said...

hell yea!
really happy for you ...

~AM

Jake David said...

Hey, let's hear it for sighs of relief, and for wonderful ladies! Great news all around!

Looking forward to seeing you around again.

- jake

Unknown said...

YES!
Kick ass. Congrats Josh~~I'm so happy for you, your belly, and your new love, what a great way to celebrate!

~Liz

drewski said...

giggle. we're happy for you both.

Unknown said...

Salute! Great news my friend!

Anonymous said...

Yeah!!!!!!!Fantastic news Josh. Have a fabulous time with your new love. Big hugs to you and mom and dad.

Megan

lefty librarian said...

OMG OMG OMG OMG OMG. It is so great to hear good news from you. I am so happy to hear this good news! Yay! Yay!
Mazel tov to you and to Daniel and to Cheryl. I'm so glad. You have to come visit soon to meet Zachary Miles Beyer...

Anonymous said...

Congratulations Josh! Y'ou've been the stronger and you deserve to take all the happyness and pleasure you have missed for more than a year.
Enjoy, enjoy, and call me when you and Sarah are on a romantic trip to Paris!
Big kisses

Clara

Anonymous said...

I offer the words to a song Joshua and I learned from Daniel's singing group, the Mirthtones, who kept Daniel afloat for many hours while Joshua and I were in away in hospitals. The song is IN CAPS, with comments. I don't know the title, or the songwriter, but here are the words:


DON'T GIVE UP

(thank you Michael Jay for urging me to keep searching for treatment when everything seemed hopeless)

GIVE A LITTLE KINDNESS
TO YOURSELF

(thank you Lynn Garodsky and Andrea Kachuck for being my friends in times of terrifying need)

PUT A LITTLE FLEX
PUT A LITTLE FLEX IN YOUR PLAN

(thank you Mercy Medical Airlift for providing plane tickets when none were available anywhere, and getting us where we needed to go with incredible compassion)

FIND ANOTHER WAY

(thank you Dr Einhorn for years of dedication to science and curing testes cancer)

LIKE A RIVER

(boy do I need a river trip: who is up for a river trip? Wait a bit: we need some muscle mass back...)

FLOW,
MAY YOU NEVER STOP FLOWING.

(To All of you pulling for Joshua, making celebrations happen, posting here, visiting, helping out at home while we were away, you will probably never know how powerful your love and friendship has been. You've held us up.)



We hardly know how to celebrate any more, it's been so long, and we are so tired. So, just put me in a river, or bathe me in the sea, and offer Josh your love.

I am drenched with gratitude for everyone who worked so hard for so long at Indiana University Hospital, Stanford Cancer Center, Norris Cancer Center/USC, and UCSF.

And thanks to Andrew and Melissa for introducing Sarah to Josh. What took you so long? Jeez.


Mom

abaker said...

Hoohoo!!!
Hooray on all accounts.
I'm blowing bubbles for you.
Amira

CalifSherry said...

Until now, I never understand the term "stunning news."

Kisses to you Liliensteins, one and all. And congratulations on the beans.

CalifSherry said...

On a purely selfish note, I hope you will continue to write where I can read along.

MommytoCoandAl said...

What beautiful beautiful news!!!!!!! Could not be more thrilled for you, Daniel and Cheryl. Congrats!! Let me know if you want to celebrate in Boston!!!

Zpora said...

YAHOOO! josh and cheryl and daniel, what wonderful news. rest up, all of you: float down rivers, lay in the grass, celebrate. i'll do the same.
love,
zpora

Amber said...

I could not be more elated or relieved...
Hugs and kisses for everyone!

Josh - I can't wait to give you one very long hug when you are back in Palo Alto. You too Cheryl and Daniel!!

Cheers!
Amber

Anonymous said...

OMG getting a little teary - in a very very happy way. Yay for Josh! Yay for everyone! Yay for new love! Yay for good news!
-From cousin jess

Unknown said...

Hey Josh. High fives. Angie had been reading your blog much more religiously than me, and called me this morning after she saw this latest post.

Congrats. Whew. I'm shaking my head in amazement and relief and admiration and maybe also grinning a little bit and thinking you sly dog, you.

PM said...

YEAH! GET LAID!!

Anonymous said...

josh:

oh my word!

Simply, I am thrilled for you and all those who love you deeply. There are many things for you to experience that this path has prepared you for. Welcome to the other side!

mark furnari

Anonymous said...

josh:

oh my word!

Simply, I am thrilled for you and those who love you deeply There are many things for you to experience that this path has prepared you for. welcome to the other side!

mark furnari

Kacey said...

Hurrah hurrah hurrah!!!!!!!!!!!!

Awesome news all around.

Kisses kisses kisses.

Kacey

Erin said...

What? I miss like three weeks and so much has happened! Josh, I am so happy for you... there is a huge smile on my face. Please please let me know when you are back in LA. I start my surgery rotation on Monday, after a not so restful vacation in Tahoe packing up people's homes to escape the fires- so my schedule may be weird for the next few months, but I'll be around!
Erin

Anonymous said...

Wow Josh -- what an incredible relief and the best of all outcomes -- I am so happy to hear this! Enjoy, enjoy, and then come to chori! See you soon, love,Joyce

Unknown said...

Josh,

Congratulations! I'm so happy for you and your family. Now back to the slopes!

EG

Anonymous said...

Delighted by your good news, Josh...

You are very loved and very amazing...

Thank you for sharing this journey so articulately..
We clearly are ALL uplifted by your life and your open heart...

Enjoy!!

Anonymous said...

Josh, I've been following your saga through Satish. Thanks for Sharing with us. All the best with Sarah. I hope I get to see you when you are back in California. I'd love to hear about your travels, studies and future plans.
All the best,
Steve Morgan

Anonymous said...

josh:

pardon my french, but you are the shit.

now get back to LA so we can celebrate here too!

dc is lovely and i'm delighted you're enjoying the east coast for the both of us. if you're still there, do try the falafel place on 18th street. and the 18th street lounge is fantastic. and, of course, am thrilled to hear things are rocking out in the romance department.

smiles, cheers, hugs from LA,

amy baughman

Anonymous said...

Iam so happy to know you are on the final road!!I'd just spoke with Daniel who give me good news from you.Je suis enfin heureuse pour toi!!! So bientôt les cidreries !!! je te le souhaite vraiment! Je pense souvent à toi et suis près de toi par la pensée Gros bisous de France, de Toulouse particulièrement.Christine

Meagan and Scott said...

Dude, seriously I am like jumping up and down, all around. I am SOOO excited. And I am so happy for you. YES!!!!!!! Whoo hoo!

Anonymous said...

Wooooohooooo!

Congratulations, Josh, on all accounts. You rock. :-D

If you're headed back to Palo Alto in the next few weeks, call me! I'm in the bay area for family med until mid August.

Becca

Anonymous said...

Having read the article in this morning's LA Times, just want to say, you are a brave man and get well soon

Anonymous said...

Welcome to the other side........brave fight........

Anonymous said...

I have an appointment with my oncologist on Wednesday. I plan to take a copy of the LATimes article with me.

Anonymous said...

Your story was in the LA Times today. Keep up the good fight we not only need Doctors like you, we need people like you./ One more person is praying for a complete recovery and a beautiful life. hugs, b

Marsha said...

Joshua,

While I don't know you. I believe you will be an outstanding doctor and an inspiration to others.

Continued healthy outcomes and happiness on your journey!


Marsha

Anonymous said...

I read your story in the LA Times today. Quite the story. Brought tears to my eyes. Your outlook surely has helped you through this, as has the support of your family and friends. I was once an oncology nurse and know how hard it must be. May God bless you and may you from this point on, be free of the cancer that ravished your body. Good luck now and when you return to Med school.

Anonymous said...

I read the story in the Times today, like so many others. You are the kind of person I would love to meet. Happy endings are wonderful (from one who knows these kind well to another). Well, love and all that stuff.

Best ahead,

Lyndsay
lmvogel@stanford.edu

Anonymous said...

I am so excited for you. I go to UCSF med and would be devastated if something like this happened to my classmate. I am really happy for you and thankful that you have had such supporting family and now........ sara.

Congrats and enjoy your new life.... again

lauren said...

that's such great news!!!!!!!!!!

yah, congratulations on the beans...

can't wait to see you when you are back in l.a. my friend.

love,
lauren

Anonymous said...

Mazels! What amazing news querido amigo! I can't wait to celebrate in person but you clearly have your priorities straight. Un gran abrazo, Gabe

Unknown said...

Congrats Josh!!!! I can't wait to celebrate you soon when you come back to LA!! You're amazing... and your writing is beautiful (I think you need to publish this blog).

See you soon!
Jessica (Green)

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