Sunday, December 24, 2006

home: the lap of luxury



I am home for the holidays, and couldn't be happier. Sitting by the fireplace with my parents, drinking tea, eating my mother's fabulous cooking, going on walks in the woods with the dog, seeing old friends - it's exactly what I needed to recharge and relax before starting my ACE regimen at Stanford on Tuesday, December 26. This round will be easier by definition because it will be outpatient, which means that I will only have to physically be in the hospital during the day, and will be able to crash at home at night. I have no way of knowing how I will tolerate the side effects, though. From the doctor's perspective, I can understand that since everyone reacts differently, they can't give me much information. But from the patient's point of view, this is shocking. What do you mean, "you don't know"?! That's ridiculous! How am i supposed to prepare myself? Jerks!

17 comments:

Jim Katzenstein said...

Hi Josh,

Sorry I havn't sent you anything to date, but to tell the truth, I was not sure what to say and didn't want to say the wrong thing (whatever that is!). Anyway, I am glad you had a good time with your mom and dad over Christmas.

I am leaving for Tanzania this coming Sunday for the month of January. We are building health care capacity through several projects in a local medical center and medical university. We fund a mobile remote clinic called Safe Motherhood that provides prenatal and postnatal care for mothers and well baby visits and vaccinations for their babies. We are also funding a radio program that broadcasts public health information across Northern Tanzania, and a visiting physician program that we call Adopt-a-Doc. I am also working on a telemedicine pilot linking a remote clinic with the main hospital but that is going a lot slower. If you get time and feel like it, check out our web site www.healthspaninternational.org. I will write more from Tanzania. Hang tough and my prayers will be with you.

Anonymous said...

Very happy to see you home. Will visit soon.

-- Pablo

Anonymous said...

There is nothing like Mom's cooking to get you back into Physical and moral great shape. I am so happy to see that you are keeping such a positive attitude. Keep it going.

Hey, how was Woddy?

Anonymous said...

Josh,
I want to thank you for making the effort to share your thoughts, which you do so well and with uncanny candor. When I first learned about your diagnosis, I pictured you lying in a hospital bed, frail, mawkish, muddy-minded, and only vaguely resembling the Josh I knew. Well, that ain't happenin'! Your blog obliterated that image. It's a wonderful way to be reminded that hey, you are you, and despite the effects of this horrible disease and its treatment, you are still without any doubt the one and only you! Yes, I know that you're hardly 100% all the time, or even most the time now, but I am so grateful that the pre-blogger Josh Lilienstein we all know and love comes through loud and clear in your blog! THANK YOU! and Happy New Year!!! Melissa

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